30 oktober 2012

Love vs Cancer


This week is a heavy one.
Now you may think: she has been having heavy weeks since october 2010 (nag, nag, nag)
True. Not once did I get good news. 
A very depressing blog indeed. 

Unfortunately no good news today either. 
 I am in so much pain. Pain of the tumors in my upper body. 
And yesterday my oncologist told me that the chemo we started after the holidays also does not work for me.
So no more Vinorelbine. And that's very disappointing. 
 I have to start on a different kind of chemo a.s.a.p. 
This time it is Gemcitabine.
Let's hope it works. 
Maybe I will start tomorrow, but I hope next tuesday.

I will not stay gloomy. 
Because as long they have medicine's to fight this one, I will keep on fighting.
My mom keeps on fighting my cancer with quilts of love
This quilt she gave Kikki today. Beautiful.
But mostly very nice to have on the couch and to sleep under.




26 oktober 2012

Blogging


You didn't hear from me for a long time 
Sometimes it's stupid to write on my blog
This is one of the moments, weeks, actually

We went to friends in Paris in my "good" week
I could do that because I could sleep in the afternoon, before dinner and go to bed early
So each day I could do something fun (with a little help from my friends)
Decadent tea at Ladurée with Kikki, Nina and June
A stroll in the park with our designer dogs
And even to the top of the Eiffel Tower! (fun with Marieke, Pieter and kids)
Paris was really nice and cosy!

But back in Amsterdam another chemo
and when I should fell better on thursday I didn't
I have a lot of pain, I think my lungs again
So next monday they will check whatever is wrong now

And that's why I don't want to blog! I want to write that I'm feeling all right!

17 oktober 2012

I woke up in the middle of the night


My skin didn't feel as soft as this rose tonight ( I got the rose from Shara, isn't she beautiful?)
My chemo has an other side affect
I woke up in the middle of the night with a terrible itching skin
I went upstairs, had something to eat and put a lot of menthol powder on my skin
It kept on itching till the alarm clock woke me up

My days are getting better. So that's a good thing!
Looking forward to Paris. Not able to walk all day but little actions are possible.
Like having decadent tea at Ladurée for example
We take our designer dog with us :-) How Parisienne...





14 oktober 2012

Fall


Time for a Carrot Cake
He's yummie!

How did I go this week?
The chemo makes me tired, but that you already knew
I get my chemo's every monday. 2 weeks up, 1 week down.
If I have my chemo I sleep till wednesday morning but this wednesday I had a bad case of "something I don't want to say with this nice picture of a carrot cake above"
Thursday this was resolved, I was happy!
The last 3 days feeling better then I did since july!
That is something!

9 oktober 2012

On a date with my dad


We went to the hospital for my weekly chemo
I watched a new serie on my IPad "Damages"
And dad read the VI

Feeling tired, slept till now since yesterday
But that is one of the side effects of this chemo

8 oktober 2012

Golden tip


We have been to Paris already a couple of times with the kids
This fall we will go again
Ruud goes with Pierre and Mees to Paris Saint Germain (Paris soccer club...)
But has anybody a golden tip to do there with the kids? Something "off the beaten path"?
We have done already all you can think off with kids there, so something new and refreshing?




day before


Mees was to Ajax
Doreen an me went to the "heide" with the girls
And with our baby dog Nilli

Felt a little off this weekend. Ofcourse tired but also a little feverisch
When does it ever stop...
But Doreen took care off the kids while I could rest, that was nice
tomorrow another chemo


4 oktober 2012

4 october



It's not only Animal Day
But also on the 4th of october 2010 I heard I had spreaded breastcancer
2 years of treatments further,
and I still take life day by day
My wish for the next couple of weeks...
...more energy. 
Since my lungs and the virus I can't do much on a day
I feel tired
That has to change!!!
But day by day and hopefully in a couple of weeks I can go for a walk on the beach with the dogs
In the meanwhile we, me and the dogs, take little naps

1 oktober 2012

Stiching art


Wow!
This way too beautiful wrapping paper holds a home made Courgette Apple Cake by Brigitte
Yammie!
The message on the paper is stiched!

Got my chemo today.
Slept all afternoon.



Back on time


I got fired from the hospital on saturday afternoon.
Kik had her birthday party on sunday
They went to a workshop "making an object or necklace out of stone"
Esther brought me to the party at the end so I could see the results
It was fun