11 maart 2013

Thank You All



Wij willen jullie bedanken voor alle steun, liefde en betrokkenheid
Zonder die steun hadden we niet geweten hoe we het hadden moeten redden

Liefs

Ruud, Mees en Kikki

5 februari 2013

Straight to heaven


Van Westerpark tot New York
Onze lieve Claudia wilde nog zoveel
Helaas moest ze het leven dan toch loslaten

Bussum 07-03-1971
Amsterdam 04-02-2013

Correspondentie-adres
Van Bossepad 10
1051 MA Amsterdam

Claudia is in uitvaartcentrum Westgaarde
Ookmeerweg 273 Amsterdam
Alwaar geen bezoek

We begraven Claudia op vrijdag 8 februari 2013
Om 12.00 uur
 op begraafplaats Sint Barbara
Spaarndammerdijk 312  Amsterdam

Aansluitend is er om 14.00 uur -zoals Claudia zo graag wilde- high tea in
Studio De Zaal Egelantiersstraat 139  Amsterdam

We vinden het fijn als je voor Claudia een gekleurde roos meeneemt

31 januari 2013

Sick & Silk


I felt off the last couple of days
Why? I don't know
Yesterday was the worst day
I couldn't move
So I kept in my bed all day long
Today a little better

Checked my blood 
The platelets where monday 25 and wednesday 26
Monday again a blood check and hopefully my chemo...

And I got a very early and nice birthday present!
Pierre and Nina gave it to me
A silk shawl from Officine Generale
Out of Pierre's second collection 
I hope he will conquer the world with Officine Generale

28 januari 2013

Lower, lower, lower


Stupid platelets
Getting lower and lower
Causing bloody noses and bruises
Got them checked last week monday, friday, today and have to come back next wednesday





27 januari 2013

Black as ice

Kikki, not posing for a picture of Janis Joplin by Anton Corbijn
exhibited in De La Mar Theatre

We have been to Andre Hazes, the musical.
It was great!

First we ate sushi at a restaurant with a conveyor belt. Kids favourite food!
children had a lot of fun

And this was after a long day of ice skating.
Mees went on a skate tour with Sjoerd, 40 KM!
And at home, behind our house boat, some more skating on our private skating rink
Black ice!
Beautiful

That still hurts a little
How I longed to be on the ice as well...
I wasn't good in many things but I loved ice skating
Will my children remember that?
I was not able to show them yesterday...

25 januari 2013

♫♫ Make it a better place ♫♫


I got a bracelet today from Marichelle
A snake wrapped around a string
check her website http://bymarichelle.com

Wikipedia: Snakes have also been widely revered, such as in ancient Greece, where the serpent was seen as a healer. Asclepius carried a serpent wound around his wand, a symbol seen today on many ambulances.

And last sunday I also got another bracelet with a healing stone from Marieke

There's no harm in trying
And I love my charms

Getting things done


Getting a new passport in trendy Bos en Lommer.
Everything in motion for NY!
Did I already tell you we have booked?
We are going to the City That Never Sleeps, for 9 days!

Today I had my blood checked 
My platelets (bloedplaatjes) are low
Can't have my chemo next monday
But have to go to the hospital anyway to let my blood checked again
If it's still too low then I will get a transfusion

21 januari 2013

Move on


kids wanted to ride the sleigh in the Westerpark after school
So me and Ruud went along with the dogs

It was already getting dark
But the children had fun and Ruud and me had fun as well

Carpe Diem (en alle andere cliché's)


Stupid, stupid, stupid cancer



When did something work? Also this one doesn't
Some grew (in my lungs) and some got smaller 
My oncologist recommended to stop the chemo's 
and to keep on writing the prescriptions for pain

But I'm not ready yet
I want to continue the chemo's
So each monday I will get Adriamycine
And I will keep some hope it will prolong my life

I have to go to NY at the end of march!
Stupid cancer!

17 januari 2013

Deep beneath the cover of another perfect wonder


Walking the dogs
The dogs didn't want to be in the picture

How I love winter.  The snow, ice

Last monday I had my chemo
And a CT Thorax
Next monday I will know if this chemo is doing something
I really want this one to work, just a little bit?

I'm doing ok
Days go by
I try to walk the dogs
Do something useful
I feel no pains with a little help of morfine
My lungs are doing better with the oxygen


13 januari 2013

♫♫ It's just another manic Monday ♫♫


Sitting at the dug-out at AFC.
The sun was shining and Mees played well. E-top SDZ against E-top AFC. 
The game ended in 4-4. SDZ could have won, but they didn't

Tomorrow a chemo treatment and a CT Thorax scan
I don't like mondays

At the moment I feel ok
Sometimes there isn't much to tell

I'm organizing our trip to NY 
But it will be for real when we have booked our plane tickets 




11 januari 2013

The Look of Love



We are producing a trip to New York. Not so simple with an invalid dragging along
Because I need oxygen and morfine 24/7, a place to stay without stairs, does the insurance think it's ok etc

A friend was here today and she took me to the park with the dogs.
Three muddy mongrels in the back of her Mini Cooper.
There was a Hipsta moment but I forgot to take a picture
After a week of sitting inside it was nice to be in the sun

But my Blog needed an update and this picture I still owed you 
A photo of my tattoo. 
The tattoo is handwritten by Ruud.
The look of love.
The song was Ruud and mine when we just met.




6 januari 2013

Sunday 6 januari



Nothing to tell but hereby an update:

Thursday the boys burned the christmas tree

Friday we went with "La Familia Mayor" there!
to restaurant Fa Speijkervet. A treat from Grandpa! The food is nice
Yesterday I slept mostly

Today we took it easy and had some friends here

Tomorrow back to school.


My health:
I think I get more energy, more breath
Less fluids maybe?
We will know tomorrow. I have chemo but also a Thorax Photo and a meeting with my oncologist
Also we can ask her about NY... Can it be done?

Oh! And Kik made some some hamburgers
Cupcake hamburgers




2 januari 2013

Another beautiful day...


I had a better day, today
A good thing because we could go to the circus, the four of us
A dear friend, Hans, arranged tickets for The Christmas Circus in Carré
David Larible, world's best clown and a friend of Hans, has an act
So funny but also sometimes really tender

My feet are getting better, less fluids
My breath is getting better
Are we able to go to New York???
Hopefully!!!




Wishesssss



There is a Holy Place at the most Northern point of Ireland
Brigitte and family burned me a candle there. 


Doet, Me, husbands and children lit Chinese Lanterns, å­”明燈, for our most sacred wishes...



30 december 2012

Wild West


Exciting night! We had a shoot out in front of our door!
It appeared to be a machine gun shooting
Mees and me where lying together in the big bed only 6 meters away
We thought it was fireworks...

The second time in my life I'm confronted with a gun shooting!

My health:
My body is holding fluids due to a high blood pressure in my lungs
Problem areas are my feet and behind my lungs
Resulting in really short breath and appreciating my Uggs more and more








23 december 2012

Foutje, bedankt!

Parool, zaterdag 22 december 2012

The Maya's made a wrong prediction
The world still exists

Mijn foutje leidde wel tot een ziekte

21 december 2012

Doomsday


It's Friday 21st of December 02.50 uur
Still it's not the end of the world
Bummer! I thought all my problems would be solved.
We would all go down together!!!
But you never know, still 21 hours to go...


20 december 2012

O, Denneboom


HAVE A HAPPY HOLIDAY!!!



Love this time of year
Love my Christmas tree
A story with almost every Christmas ornament hanging in the tree
Tomorrow Kik and Mees will buy their ornaments for this year

Me and my health;
My stupid left lung is not working as it should
At home I now have 24/7 oxygen



18 december 2012

My view


Our weekend was great. 
It was a culinary weekend.
1st evening.... Cuichine was very nice
Saturday we had brunch in Antwerp and did some Christmas shopping
2nd evening we dined at Kint&Co
And to finish it on sunday we had a Slow Food Lunch at Kint&Co
In between we were at the house sitting in front of the fire place 

So this was my view during all the diners
Nice view

The only bummer this weekend was that I had some new pains

So while we waited in hospital yesterday
I had the same nice view: this handsome guy
We were at AVL all day, from 10 to 5
No chemo because the doctors wanted to know where the pains came from
So all day long tests, waiting, waiting, talks, waiting, waiting, treatments

Results:
too much blood pressure in my lungs
So they gave me another pill






Burn baby burn


Esther burned one in Maastricht

15 december 2012

Away


Yesterday afternoon we already sat at the fireplace at Jacq's and DJ's country house.
Went to a really nice restaurant in Antwerp, "Cuichine", eating fried soft shell crab, yummie
Woke up with the sun on the fields (now gone...)


It's nice to be away with the two of us
It gives us a little bit of peace of mind



13 december 2012

Feeling weird


Strange days

Are it the long dark days before christmas?
I feel really strange
How do you go on living with "strange"
I told a friend that it feels like a "vacuum"

I try to go out
Today a walk in the park and "appeltaart" at the Espresso Fabriek

Tomorrow with Ruud to Zeeuws Vlaanderen. Time together!

11 december 2012

♫♫ The hills are alive ♫♫


Just in Dutch:


Wie heeft de gouden tip?

Ik wil heel graag met de kinderen, kan buiten schoolvakantie's om, naar een zeer fijn familiehotel (of heeft iemand nog een andere accommodatie in gedachten) in de bergen.

Mijn wensen lijstje is:
Niet belachelijk duur (liever budget)
klein ski gebied, overzichtelijk
Familiehotel incl. diner en ontbijt aan de piste
Ik wil met vliegtuig en dan maximaal 1 uur in auto tot hotel

Ik kan namelijk niet veel dus voor mij moet het makkelijk bereikbaar te zijn, fijn naar mijn kinderen kunnen kijken, genieten van de bergen




8 december 2012

Heaven


"Dessert Heavenly Mud"

Dining out in our own home
Jet & Jan cooked us a dinner. And stayed to eat it.

7 december 2012

Weather Alarm


Yesterday no "Weather Alarm" in Amsterdam
Went for a realy nice walk with Doet and the dogs
Sun, snow, dogs and talk
What else can one want?

I'm feeling strange
Could it be the long, dark, days before Christmas?

6 december 2012

First snow


Can you see it?
We went out around midnight
First snow this season
Shall we wake up the kids
They would love it!

Nope, We lett the dogs out and now to bed!

5 december 2012

A little sunshine


Mom was here to spend some time. I took the chance to go out with her and the dogs
We had crispy cold sunshine
Hadn't been out of the house in two weeks so it was time.



Some sweet love from the kitchen


Ruud made us yesterday

Guinea fowl (parelhoentje) in pancetta with fennel and tagliatelle....yummie


3 december 2012

Zie de maan schijnt door de bomen


My favourite three

"Sinterklaas" in The Netherlands
The start of a warm time, one of my favourites
Next weekend all my beautiful decorations will find their place in the christmas tree
Something to look forward to

Today I heard I will change my chemo from 2 weeks up and 1 week free to chemo every week!
Every monday!
So no christmas holidays for me. 
But hopefully something that works.....

1 december 2012

Morfine addict


Thursday late afternoon AVL thought I could go home again
I had my own morfine pump
"Thuiszorg" was arranged
Happy to go

Have to get used to the bag hanging day and night on my hips
With a tube going into my arm
It is so really sick
It shows