31 januari 2012

Again no chemo....

Even no picture today!
My neuro's went down again. 
Today 1.2!
Thursday we will try again.



30 januari 2012

Neuro's higher and higher.....


Let me tell you your love
keeps on liftin' me
higher,higher and higher.
I said your love keep on
liftin' me higher and higher.

Neuro's 1.6! So 99% chance I will get hooked up to chemo tomorrow!

27 januari 2012

At the end of a rainbow...


No chemo today..... my neuro's are still to low. Now 1.1.
Again disappointing. But Ruud and I made from a stupid day a nice day.
We went to the beach with the dogs. We took a ferry across the Noordzeekanaal. Fun!

Nest monday I will get my blood checked. If it's okay I will get my chemo next tuesday... We will see!



25 januari 2012

Now on tv...


In the daytime I will meet you as before.
                                                   You will find me waiting by the ocean floor,
building castles in the shifting sands
in a world that nobody understands,
In a morning.
it's the morning of my life
'Tis the morning of my life

23 januari 2012

No chemo today

Big disappointment! No chemo today!
My neuro's failed me.... 
A week ago on monday they where 0.1, Last friday 1.2 and today 0.8!
They have to be 1.5 at least!
Next friday we will try again.

Burn baby burn...

My big sis burns a candle in the Cathédrale Notre-Dame de Paris for me.

Sweety!



Mia as clini clown!

19 januari 2012

Party!!!

Mees is having a blast with his team (not the orange hats). 
They went to AJAX-AZ! They really had a great time! Only AJAX forgot to win...

18 januari 2012

Wonders....

Never knew..... There exists an eyelash grow serum!!! 
All I want to say is.... 
I WANT MY HAIR BACK AND GET RID OF ALL THE EXTRA MEDICINE POUNDS...


17 januari 2012

sunnyday

Sunny 4 °C. 
Walked the dogs in the parc. It seems all that I do. 
With the dogs to the beach or parc.  
Next to doing stuff with Mees and Kikki.....

Keeping low profile. 
Hospital said I had to look out that I don't get sick with such a low Neuro

So it's up to my creative friends to keep my blog interesting.
Where is all the fun stuff? Nice pics, movies, drawings etc.......

16 januari 2012

Check up.........

A friend of ours filmed us in the parc. To be premiered soon on my blog!

I went to the hospital today for my blood test. Neuro's extremely low... 0.1
Friday another check-up, blood test, and hopefully my last chemo next monday!

I have to make an appointment for my next scan. 
Somewhere in the week of 6th februari. Keep you posted.


9 januari 2012

'Once Upon a Time'



Addicted to series. 
And you would think in my situation I would choose other series but I like these two. 
One about a cancerman breaking bad and the other one of the blood specialst/serial killer, Dexter.
It's a way to spend my couch time..... (and that is a lot, unfortunately)

Speaking about blood..... my neuro's are 1.2 today.


7 januari 2012

A cat always lands on his feet

Went to the film with the kids after a long week of sitting inside. 
Like every first week also this week was heavy. 
Had pain while breathing, the internist wanted me to come to the hospital. It wasn't alarming. 

2 januari 2012

Not quite Disneyland

Christmas holidays. 
What better way to spend it than visiting your mom in the hospital during her 5th chemo.
But it was a little festive..... 
I got my scan results from last week and Olaparib is still doing its work. 
All tumors are normalised except for one. 
After the next two chemo's we will decide if we stop after 6 treatments or that I will get another 2. 
It depends, if the treatments are still effective.... For now they are!!!

1 januari 2012

New Year's Eve

Yesterday we celebrated New Year's Eve with friends on the Noordermarkt. 
Today is a new day, a new year.... new chances
Today I feel the fear for my results I will get tomorrow... 
And another chemo which I don't feel like having.

Happy moments

Kids had a 4 day course speed skating on the Jaap Eden Baan. 
They had a lot of fun and so did I.

Extra check-up

Last friday I got an extra bloodtest. Mees and Kikki went along. 
Neuro's where 0.8. Good enough to go for my 5th chemo next monday.......

27 december 2011

11th monday morning check-up

No blood pictures..... but a happy one
Neutrophil granulocyte is 0.3
Also had my CT Scan today. Monday 2nd of januari 2012 we will get the results.



24 december 2011

Antwerp

Christmas shopping in Antwerp with the kids and dogs.
Not a really long day but a nice day. 
We shopped for two hours and ate Belgian Waffles along the way.
On our way back home we invited ourselves for dinner with friends in Laren.
A good start of the christmas holiday

19 december 2011

10th monday morning check-up

Neutrophil granulocyte is today 1.0. Healthy people have 7.5. 
For the next cure it has to be 1.5

16 december 2011

Stormy weather

Wijk aan Zee.
Had to get out of the house. Was getting sick from sitting inside...

11 december 2011

Ruud and me tanked up

We went to Monnickendam and toured in the backgarden of Amsterdam, Waterland. We stayed in hotel/restaurant "De Posthoorn". It was wonderfull! 

At arrival in our room we found 3 bags with presents and an enveloppe what told us that the arrangement in "De Posthoorn" was given by Doreen, Pieter, papa and mama. Too much..... I cried.

Besides all the presents they took care of the children, dogs, soccer, hockey. Cleaned the house. Wiped the windows. Placed a christmastree outside. Painted the kids rooms.....

Too much to thank for. How can I ever repay? What will we do without them?

8 december 2011

5 december 2011

30 november 2011

A day not blogged is a day not lived...

nothing to tell....
The sun is shining, a day for myself, been to the park with my dogs, a good day!

28 november 2011

Ruud is my Dexter....



Today in the elevator of the AVL. Was there for my 8th blood blood analyse... every monday... 


I've got my own bloodstain pattern analyst his name is also Ruud. Never saw him. He works in the lab at AVL. 
I see his name on the tubes with blood. He analyses my blood on the scientific disciplines of biology, chemistry, mathematics and physics....  If an analyst follows a scientific process, this applied science can produce strong, solid evidence, making it an effective tool for investigators,.....my oncologists.

25 november 2011

The Leco look

I just saw Leco van Zadelhoff on TV. I have my flaws.... I love Leco hair (and Marco Borsato) 
My mom promised me last year a treatment by Leco when my hair had grown back.
It's a long wait but one day I will look like Leontien....

Loving Parents

Mom and dad came by to help around the house. 
Dad worked outside.....(high pressure cleaner)
What must I do without them!!!

24 november 2011

Couch potato

First week after 3rd chemo. I'm tired. 
But also bad-tempered. 
It's temporary.... Maybe tomorrow or in a few days I will find my good mood back.
Otherwise I have finally something to talk about with my shrink.



18 november 2011

La nouvelle coupe....

Artwork © Irena Ruben

Oh, I get by with a little help from my friends
I get high with a little help from my friends
Gonna try with a little help from my friends

My shrink says you have different kinds of aid.... Head, Heart, Hands.

Some friends surf on internet, 
some friends you can talk with, some bring lyrics, 
some bring juices, some take care of my kids
and some friends cut my hair or give me hair...... 

16 november 2011

Room with a view

Today a session with my psychotherapist. The view from her couch.
Talking helps. It gives us other views.

4 november 2011

Rudi and Messi

I live a really dull life at the moment. I'm so tired that turning on the tv is already too much of an effort! But my incredible husband has a little more adventurous life! Ruud photographed the God of soccer, Messi, in Barcelona for an Adidas campaign yesterday! Ruud is my hero! And not only because he photographed Messi.....