Sick & Silk

I felt off the last couple of days

Why? I don't know

Yesterday was the worst day

I couldn't move

So I kept in my bed all day long

Today a little better

Checked my blood 

The platelets where monday 25 and wednesday 26

Monday again a blood check and hopefully my chemo...

And I got a very early and nice birthday present!

Pierre and Nina gave it to me

A silk shawl from Officine Generale

Out of Pierre's second collection 

I hope he will conquer the world with Officine Generale

Lower, lower, lower

Stupid platelets

Getting lower and lower

Causing bloody noses and bruises

Got them checked last week monday, friday, today and have to come back next wednesday

Black as ice

Kikki, not posing for a picture of Janis Joplin by Anton Corbijn

exhibited in De La Mar Theatre

We have been to Andre Hazes, the musical.

It was great!

First we ate sushi at a restaurant with a conveyor belt. Kids favourite food!

children had a lot of fun

And this was after a long day of ice skating.

Mees went on a skate tour with Sjoerd, 40 KM!

And at home, behind our house boat, some more skating on our private skating rink

Black ice!

Beautiful

That still hurts a little

How I longed to be on the ice as well...

I wasn't good in many things but I loved ice skating

Will my children remember that?

I was not able to show them yesterday...

♫♫ Make it a better place ♫♫

I got a bracelet today from Marichelle

A snake wrapped around a string

check her website http://bymarichelle.com

Wikipedia: Snakes have also been widely revered, such as in ancient Greece, where the serpent was seen as a healer. Asclepius carried a serpent wound around his wand, a symbol seen today on many ambulances.

And last sunday I also got another bracelet with a healing stone from Marieke

There's no harm in trying

And I love my charms

Getting things done

Getting a new passport in trendy Bos en Lommer.

Everything in motion for NY!

Did I already tell you we have booked?

We are going to the City That Never Sleeps, for 9 days!

Today I had my blood checked 

My platelets (bloedplaatjes) are low

Can't have my chemo next monday

But have to go to the hospital anyway to let my blood checked again

If it's still too low then I will get a transfusion

Move on

kids wanted to ride the sleigh in the Westerpark after school

So me and Ruud went along with the dogs

It was already getting dark

But the children had fun and Ruud and me had fun as well

Carpe Diem (en alle andere cliché's)

Stupid, stupid, stupid cancer

When did something work? Also this one doesn't

Some grew (in my lungs) and some got smaller 

My oncologist recommended to stop the chemo's 

and to keep on writing the prescriptions for pain

But I'm not ready yet

I want to continue the chemo's

So each monday I will get Adriamycine

And I will keep some hope it will prolong my life

I have to go to NY at the end of march!

Stupid cancer!

Deep beneath the cover of another perfect wonder

Walking the dogs

The dogs didn't want to be in the picture

How I love winter.  The snow, ice

Last monday I had my chemo

And a CT Thorax

Next monday I will know if this chemo is doing something

I really want this one to work, just a little bit?

I'm doing ok

Days go by

I try to walk the dogs

Do something useful

I feel no pains with a little help of morfine

My lungs are doing better with the oxygen

♫♫ It's just another manic Monday ♫♫

Sitting at the dug-out at AFC.

The sun was shining and Mees played well. E-top SDZ against E-top AFC. 

The game ended in 4-4. SDZ could have won, but they didn't

Tomorrow a chemo treatment and a CT Thorax scan

I don't like mondays

At the moment I feel ok

Sometimes there isn't much to tell

I'm organizing our trip to NY 

But it will be for real when we have booked our plane tickets 

The Look of Love

We are producing a trip to New York. Not so simple with an invalid dragging along

Because I need oxygen and morfine 24/7, a place to stay without stairs, does the insurance think it's ok etc

A friend was here today and she took me to the park with the dogs.

Three muddy mongrels in the back of her Mini Cooper.

There was a Hipsta moment but I forgot to take a picture

After a week of sitting inside it was nice to be in the sun

But my Blog needed an update and this picture I still owed you 

A photo of my tattoo. 
The tattoo is handwritten by Ruud.
The look of love.

A song by Dusty Springfield

The song was Ruud and mine when we just met.

Sunday 6 januari

Nothing to tell but hereby an update:

Thursday the boys burned the christmas tree

Friday we went with "La Familia Mayor" there!

to restaurant Fa Speijkervet. A treat from Grandpa! The food is nice

Yesterday I slept mostly

Today we took it easy and had some friends here

Tomorrow back to school.

My health:

I think I get more energy, more breath
Less fluids maybe?
We will know tomorrow. I have chemo but also a Thorax Photo and a meeting with my oncologist
Also we can ask her about NY... Can it be done?

Oh! And Kik made some some hamburgers
Cupcake hamburgers

Another beautiful day...

I had a better day, today

A good thing because we could go to the circus, the four of us

A dear friend, Hans, arranged tickets for The Christmas Circus in Carré

David Larible, world's best clown and a friend of Hans, has an act

So funny but also sometimes really tender

My feet are getting better, less fluids

My breath is getting better

Are we able to go to New York???

Hopefully!!!

Wishesssss

There is a Holy Place at the most Northern point of Ireland

Brigitte and family burned me a candle there. 

Doet, Me, husbands and children lit Chinese Lanterns, 孔明燈, for our most sacred wishes...