Jump!!!

I get up, and nothing gets me down. ♫♫

And the results are...

The last couple of weeks  were not my finest moments...

As you know I couldn't finish my chemo's as planned.

That didn't feel right!

Most of all because the pain came back.

Not a good sign.

With this knowledge I dreaded the results of the scan 

How I know my body! 

It is exact as I thought it would be.

The tumor in my right breast has grown again. (it's the size of a marble...11mm)

The pains in the rest of my upper body can suggest that there is also little grow of tumors.

What to do now?

We will wait if the high dose of Olaparib kicks in.

Olaparib can stop the grow or even reduce it a little.

We will see...

Next scan in 4 weeks.

Wall...

Pffff...... 

State of mind: weekend was ok with the kids. They take my mind off things.

Get stomach ache thinking off tomorrow. 

The sun shines... I will take a long walk with the dogs. That will help!

Rio De Janeiro, Rio

♫ Muita calma pra pensar

E ter tempo pra sonhar

Da janela vê-se o Corcovado

O Redentor, que lindo! ♫


I like Bossanova:-)

My friend Marieke lighted already a few candle's for me all over the world. 

Now a little prayer at Corcovado...

Lord of the rings...

Had my scan this morning. Now all we have to do is wait...

Sweet child o'mine.....

Quality time with Kikki means baking. In this case cupcakes... 

She wanted to bake cupcakes for the whole class. High in artificial flavors... Sorry "Juf Caroline"

Tomorrow the CT Scan and wait till next tuesday to get some answers.

How cliche... but everytime it's so scary. My mind is making extra hours.

I told u before...

... love Marco Borsato

Comfort listening while u have treatments...

Went to a concert yesterday with mom, Doreen and Marieke.

link to one of my favourites...

It reminds me of me and my dad, but also me and my kids...

Oops... 16 x Olaparib

For now, no more chemo's...

Here they are. The pills I have to take for the rest of my life...

Daily 2x8 pills / 800 mg

The feeling is double. I don't like taking pills (16!) but they will save me...

What's happening now....

Blood is ckecked this morning. Neuro's still 1.2. Too low for chemo. 

My team of doctors decided to cancel my last chemo. But I have to start taking Olaparib asap.

Next week thursday I have a CT scan to see what the chemo's have done.

That I will know on tuesday 21st of february. Then I will have a meeting with my oncologist dr. Lynn.

I'm glad I don't have to wait anymore. I'm getting my medicine! Today!!!

Waiting...

Yesterday, in the end of the day, the hospital called me.

They still have no answer. 

It appears that the protocol says nothing about low neuro's for so long

What to do now?

The Internist and two oncologists have spoken about my case,
 but they need an answer from the sponsor/farmaceutical.


The hospital asked me to have my blood checked on friday. 
They will call me friday afternoon. Hopefully with a solution!


In the meantime we enjoy ourselves on the ice. Ruud and me walking and kids/friends skating...
Doucement....!!!

Schaatstour -> Holysloot - Zuiderwoude - Monnickendam - Broek in Waterland - Holysloot

Anton Pieck

Mees ice skating on the Prinsengracht. 

No news from the hospital. Hopefully tomorrow.

Driving home....

My bone marrow is tired! My neuro's are done!

Again no chemo today. 

I have reached the 5th week after my last chemo. 

The protocol says I can't have another chemo anymore...

Today my internist and oncologist are checking if I can have my 6th chemo although my neuro's are to low. 

The farmaceutical has to give the green light.

Tomorrow I will know more.

Speed skate fever....

Everybody has fever.... Speed skate fever! 

Me too but I'm not able to put my skates on.

One of my best friends, Doet, normally my skate buddy went already for a tour. 

(she made this heart for me on the ice...)

I'm jealous! I think my best friends should show some solidarity. 

They had a choice before! 

They could have shaved their heads.... But nobody did. 

Now they can choose to stay off the ice! :-)

Life goes on...

Thermo cable broke down at -15°C

Watermeisje, Kikki!

Sven, the helping hand!!!

Butterfly...

My blood flutters...

today neuro's 1.2

Monday again a bloodtest to see if I'm chemo ready

It's a beautiful day!!!

Winter in Amsterdam is cold ♫

Had coffee with two of my dearest friends this morning.

Without me the picture is better. 

But wanted to show you how fun it is to play tourist in your own city...

Tomorrow, thursday 2nd of february I will try again to have a chemo